Monday June 2, 2008

Sorry for the lateness of my posting. We switched up our schedule yesterday and held the girls from 8 -10:30 pm, so by the time we got back to the room I was too tired to blog.

So, the only big change was that Evie got her PICC line out – which means she doesn’t have any IV fluids and is relying on oral feedings. I was there when the nurses took it out, and it was anticlimactic, which I suppose is good. But, Joe has another medical thingamajig to put in his collection. Maggie kept her nurse on her toes last night as she had a few spells and had to get bagged. She has an issue where she doesn’t bounce back very quickly and the nurses have to breathe for her a few times. Dr. Hiller must have decided she wasn’t quite ready for the reduced pressure, so she went back up to 4. That means that Maggie is probably not quite ready for the cannula – although she still hates the CPAP and manages to continually push them out of her nose. Evie doesn’t seem to mind the CPAP too much – she’s just happy to have the ET tube out of her throat! Oh, and I figured out the additive that Maggie is getting to increase her calories, it is MCT oil (medium chain triglycerides). These are easily absorbed lipids (Joe terms), and they do seem to be helping as she is gaining weight.