Monday June 23, 2008

Grandma and Grandpa Faulhaber visited today and both got to hold one of their granddaughters. Diana held Evie and Paul held Maggie – and the girls were on their best behavior. They were stunningly good as compared to their previous couple days. I guess they wanted Grandma and Grandpa F to keep taking care of their dog and visit them again. We had a good chat with Dr. Hiller and it made me feel better that the girls were just having a dip in their rollercoaster ride and that we should expect to have a few more ups and downs before the ride is over. Maggie is still our little lung rockstar – she has been back down to about room air for oxygen needs and they decreased her flow to 0.1 liters per minute. She did get put on some Phenalbarb that should help with her biliruben levels. They checked Maggie’s ductus again and it was possibly slightly smaller. There were no changes on Evie’s oxygen or meds, but ordered to just to keep growing out of her lung issues; although the lung x-rays this morning looked pretty good. The nurses have heard an intermittent murmur on Evie, but again just think it is a flow murmur due to growth. I asked Dr. Hiller about when, if at all, we could get moved to Bozeman. She answered what I had expected – it depends on their eyes. Most of the other issues can be monitored from Bozeman, but if there is any change in their eyes that would require laser surgery, it would need to be done in Missoula. So, I expect at least another 3 weeks in Missoula at a minimum. So, all is going well and we have some much anticipated events to look forward too.