Baby steps make up a lot of distance some days. The girls are being slowly weaned off of most of their additives: Maggie discontinued her caffeine today and Evie’s oxygen flow was decreased to .1. Evie did protest a bit as she had a few spells through the day where she desaturated – probably because of intermittent breathing. However, Maggie was sitting at 21% oxygen mix all day, until 7pm. Then Nurse Carla just turned it off. And when I fed her, she did not have her cannula in her nose; and then we took it off completely and she was doing wonderful! It’s a trial, but I think she has a really good chance of succeeding! Other than that, practice is improving and all 3 of us are anxiously waiting for Dad to come back from Redmond tomorrow (with Mom’s plants and other miscellaneous items from the Redmond house).
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